I want to tell this story once, all the way through, so that I never have to tell it in pieces again. If you are here because someone sent you this link the week after a diagnosis, or the week before one, I am glad you found it. I am going to tell you exactly what happened to us. Not the version I give as a side reel or attached to a sarcastic joke about how exhausted I am. The real one. Before I Had a Word For It I knew something was different when Dylan was one. Not in the